There are times in a parent’s life that the more challenging
aspects of parenthood cause great introspection, particularly if the parent has
a child with a disability. Nagging feelings of sadness, denial, guilt, anger, or
shame call out for soothing answers that ultimately lead the seeker to peace and
acceptance. The answers must come from within; but sometimes guidance can be
found in a special and reassuring book.
In Robert A. Naseef, Ph.D.’s book, Special Children,
Challenged Parents: The Struggles and Rewards of Raising a Child with a
Disability, the author helps parents explore their own hearts and minds by
interweaving professional insights with exquisite personal narrative, fictional
examples and real life experience. Naseef is the parent of an adult child with
autism and a practicing psychologist in the Philadelphia area specializing in
families with special needs.
He explains the complex feelings that commonly accompany loss
and grieving over "what might have been," provides coping strategies to deal
with daily challenges that haunt all parents, instills hope to "go on with
[one’s] life" and draws from his own rich life experience to lend illustrative
detail to the framework of his book. He pays homage to his beloved son Tariq,
now 22 years old, and to the rest of his family through a series of poignant
letters, family photographs and stories.
Naseef gently steps the reader through the healing process by
providing his own insight and perspective, personally and professionally. With
intimate detail, he describes the concerns he has had to face from Tariq’s
babyhood up through adulthood. He then identifies the stages of grief, how to
work through this process, how to redefine and enrich parents’ relationships
with their special child, and how to understand and guide challenging behaviors.
He gives voice to the instinctive fears, needs, and coping
styles that men and women have trouble communicating to each other to foster a
better understanding of what each goes through. He explores couple’s, siblings’
and extended families’ needs from being related to a child with special needs.
He then leads parents to finding "circles of support" through friends and
community, working with professionals who serve children with disabilities and
anticipating and planning for the future. In addition, Naseef provides a
recommended book list for children and an excellent resource list for families.
Most tellingly of all, Naseef, the father, begins and ends his
book with touching letters to his son Tariq, which express his longing to
experience "what might have been." And in this way, his words strike a cord with
us all.
There’s no question that the healing process is lifelong when
your child has special needs. The inevitable questions arise, we search for
answers, and, once we find them, we return to our daily lives; over time, new
pain and questions bubble up again. When other books gloss over such tough
subject matter, it is comforting to find a resource written by a
parent/professional who is as familiar and understanding of the totality of life
with disabilities as his readers are.
To order
Special Children, Challenged Parents from Amazon